Friday, June 30, 2017

Outcomes After Major Surgery For Patients With Myasthenia Gravis


A couple of months ago I came close to having a total knee replacement but decided against it because of my myasthenia gravis. I just thought it was too risky. My symptoms are pretty much under control and I count myself among those MG patients that have a "relatively normal lifestyle." But I've worked hard to keep it under control and I didn't want to risk a setback. There are plenty of stories on the internet about MG patients having major surgery that worked out well and others that didn't. I just didn't want to take the chance.  

Friday, June 16, 2017

Transfusions, Surgery And Medication: Young Girl With Myasthenia Gravis Is Symptom Free

Ashley Earl-Goulet, pictured with mum Judith, has
 has recovered thanks to more than 600 blood donations
Blood from over 600 people has been used to treat a Timaru teenager with a rare auto-immune disease – and she wants the donors to know the difference it has made.

Ashley Earl-Goulet, 14, is the only child in the South Island and one of just a handful in New Zealand with myasthenia gravis, a long-term neuromuscular disease which weakens muscles – most commonly in the eyes and face.

Ashley's treatment included a blood "product" nick-named "go go juice" by health workers

Wednesday, June 14, 2017

Town Supervisor Steps Down After Fighting Myasthenia Gravis For Two Years

Hornellsville supervisor will leave post at end of year

ARKPORT — Fighting myasthenia gravis for the past two years has been a chore for Ken Isaman. After 28 years as a Hornellsville councilman and supervisor, he will say goodbye to town government at the end of 2017.

The 69-year-old Republican, who also served for 12 years on the Steuben County Legislature, told the Hornellsville Town Board Tuesday night that he will not be a candidate for reelection in the fall. Isaman has been battling health issues

Tuesday, June 13, 2017

Scientists Make First Crystal Model Of Myasthenia Gravis

As a molecular biologist, Kaori Noridomi gets an up-close view of the targets of her investigations. But when she began studying the molecular structures of a rarely diagnosed autoimmune disorder, myasthenia gravis, she decided to step out of the lab for a better view.

Noridomi said she thought she needed to know more than what she saw on a microscope and decided she should meet patients who have myasthenia gravis. She went so far

Sunday, May 14, 2017

Prolonged Asystole (Flat Line) In MG Patient Induced by Pyridostigmine. Successfully Treated with Hyoscyamine

Dr. Mohammad Saud Khan

Reversible acetylcholinesterase inhibitors are used as first-line treatment for myasthenia gravis (MG).

They improve symptoms by increasing concentration of acetylcholine at the neuromuscular junction and stimulating nicotinic receptors. Serious bradyarrhythmias can occur from muscarinic stimulation in heart, which in rare cases may progress to asystole (Flat Lining on ECG monitor).

Friday, April 7, 2017

Together - For Better or Worse


CLOVIS NEWS
APRIL 06, 2017 12:30 PM
For better, for worse
BY JANESSA TYLER
Senior Living Staff Writer

It has been nearly 15 years since Dwight Harder was diagnosed with Parkinson’s disease — a degenerative disorder of the central nervous system.

With April designated as National Parkinson’s Awareness Month, Dwight hopes his story will be inspirational and, most importantly, educational for people who face chronic illnesses and diseases.

Tuesday, April 4, 2017

MG Walk Welcomed By Mayor Of Brook Run

Mayor Denis Shortal supported the 5th annual Myasthenia Gravis Walk last month at the Brook Run Park in Dunwoody. Mayor Shortal became the first mayor to open a Myasthenia Gravis Walk. The local Myasthenia Gravis chapter was delighted to have support from mayor and look forward to seeing him future events.

Tuesday, February 28, 2017

Positive Outlook Helps Young Woman With Generalized Myasthenia Gravis

Johannesburg – While she calls herself a mother of three “fur-kids”, Megan Hunter’s biggest dream is to have a baby.

“I want to be strong enough to be able to fall pregnant and have a baby. That really is my biggest wish and my heart aches for one.”

The 28-year-old is one in 5 000 people with Myasthenia Gravis: an extremely rare neuromuscular, autoimmune disease that affects all her muscles.

Thursday, February 2, 2017

After Massive Dose of Vitamin D Myasthenia Gravis Patients Goes Into Remission

By Fl├ívio Adsuara Cadegiani  | Published at NCBI  |

Vitamin D has been shown to be related to autoimmune diseases, such as multiple sclerosis and psoriasis. Correlations have been reported between vitamin D levels and prevalence and severity of other autoimmune disorders, and also between vitamin D therapy and disease improvement and remission.

Below is a case report of a patient with severe and refractory myasthenia gravis (MG) who followed a “high-dose vitamin D treatment”, a massive-dose treatment (80 000 to 120 000 IU/day) promoted by a medical center in Brazil (but still not proven), and she had her first complete remission after this type of treatment with increased vitamin D serum levels (400 to 700 ng/mL)