Friday, June 30, 2017

Outcomes After Major Surgery For Patients With Myasthenia Gravis

A couple of months ago I came close to having a total knee replacement but decided against it because of my myasthenia gravis. I just thought it was too risky. My symptoms are pretty much under control and I count myself among those MG patients that have a "relatively normal lifestyle." But I've worked hard to keep it under control and I didn't want to risk a setback. There are plenty of stories on the internet about MG patients having major surgery that worked out well and others that didn't. I just didn't want to take the chance.  

Friday, June 16, 2017

Transfusions, Surgery And Medication: Young Girl With Myasthenia Gravis Is Symptom Free

Ashley Earl-Goulet, pictured with mum Judith, has
 has recovered thanks to more than 600 blood donations
Blood from over 600 people has been used to treat a Timaru teenager with a rare auto-immune disease – and she wants the donors to know the difference it has made.

Ashley Earl-Goulet, 14, is the only child in the South Island and one of just a handful in New Zealand with myasthenia gravis, a long-term neuromuscular disease which weakens muscles – most commonly in the eyes and face.

Ashley's treatment included a blood "product" nick-named "go go juice" by health workers

Wednesday, June 14, 2017

Town Supervisor Steps Down After Fighting Myasthenia Gravis For Two Years

Hornellsville supervisor will leave post at end of year

ARKPORT — Fighting myasthenia gravis for the past two years has been a chore for Ken Isaman. After 28 years as a Hornellsville councilman and supervisor, he will say goodbye to town government at the end of 2017.

The 69-year-old Republican, who also served for 12 years on the Steuben County Legislature, told the Hornellsville Town Board Tuesday night that he will not be a candidate for reelection in the fall. Isaman has been battling health issues

Tuesday, June 13, 2017

Scientists Make First Crystal Model Of Myasthenia Gravis

As a molecular biologist, Kaori Noridomi gets an up-close view of the targets of her investigations. But when she began studying the molecular structures of a rarely diagnosed autoimmune disorder, myasthenia gravis, she decided to step out of the lab for a better view.

Noridomi said she thought she needed to know more than what she saw on a microscope and decided she should meet patients who have myasthenia gravis. She went so far