Saturday, June 29, 2013

Tumor removed from thymus gland saves 13 year old from Myasthnia Gravis related death

Surgery removes tumor that caused Enya Dakin's myasthenia
 gravis (MG, a rare autoimmune disease)
 Picture: Jay Town Source: Herald Sun
Myasthenia Gravis can gradually develop and worsen over a period of months or even years. But sometimes it can strike with an immediate and powerful life threatening force. Because of a tumor on her thymus gland,  such was the case with 13 year old Enya Dakin. Myasthenis Gravis is a rare autoimmune condition. It is a neuromuscular disease in which the body generates an immune system attack against its own skeletal muscles. 14 out of every 100,000 persons in the USA suffer from the disease. 

Enya is lucky to have been diagnosed relatively quickly. And because of the severity that it

Friday, June 14, 2013

Some "Do's" and "Don'ts" for Myasthenics

Even though I've been living with MG for about two years, it's amazingly that sometimes I forget that I have it. So I also forget to take care of myself properly and to avoid situations that will aggravate it. Then too, I will sometimes do something that I know is risky or flat out stupid. That's crazy, I know, but it's true. For those reasons I will, from time to time, seek out articles about living with myasthenia gravis - just to remind myself about what I should and shouldn't do. That can be a lot of reading. But the following list of do's and don'ts, provided by the British Association of Myasthenics, makes getting a refresher course quick and easy. It would also be helpful for close friends and family in understanding the disease. Feel free to bookmark this post so you can come back for a review once in awhile yourself.

Do's and Don'ts for Myasthenics

Tuesday, June 4, 2013

Job Stress Connection to Myasthenia Gravis?

While the association of stress and myasthenia gravis isn't a news flash, I'm thinking that it might follow that there's a job stress connection to contracting the disease.

Last Friday was my last day at work. The staff and the new owners threw a nice going away party for me. I'm actually retiring after 25 years in the advertising and direct mail business. In the back of my mind, I feel that the stress of running a small business was at least partly responsible for my developing myasthenia gravis. .

Like many small business owners, my business